While Walleye was up north four wheeling with some buddies this past weekend my sister came up for a little girl time.
It had been a while since she got to spend any quality time with Lucky. For the past 7 months every time we have seen her there's been so much going on and so many other people vying for time with Lucky that she's gotten a little cheated on time with her favorite (and only) niece.
And to be perfectly honest I invited her up for me too - we hadn't had any good sister time together in longer than I can even remember.
It was a nice, very low key girls' weekend. Exactly what we all needed.
We lunched.
We shopped.
We played.
We napped.
We talked.
(Even Lucky talked - well about as much as a 17 month old can who has around 15 "real" words in her vocabulary but millions of "baby" words!)
It was nice.
l(IF)e with a capital IF
Monday, July 22, 2013
Tuesday, July 9, 2013
What a year...
The last year has been the
hardest year of my life.
We are continuously
fighting fires – just as one is reduced to embers burning itself out another
one springs up. They’ve ranged from one alarm to five alarm fires.
It started the week after
Lucky started daycare in June. Walleye
left on a canoe trip with some buddies up to the Boundary Waters Canoe Area and
would be gone for almost a week with no way for me to get a hold of him and I
was on my own completely for the first time with our three month old. Of course Lucky got sick – really sick. A late night trip to the ER, a couple trips
to the doctor and urgent care. Little
sleep. Lots of freak outs and phone
calls to my parents. By the time he got
home she was happy and healthy again.
That was the start of
Lucky’s fevers. One, after another,
after another. They started out a month
apart and then started to get closer and closer together.
Mid-summer I had to make a
very hard personal choice – give up dairy or give up breastfeeding. Lucky had a milk protein allergy.
Late summer Duckie, my big
brother, finished his year-long, three times a week interferon shots only to
find out they hadn’t worked. A few weeks
later a seizure at work and he knew it had spread and spread to his brain – as
well as other places. The outlook didn’t
look very good. But there were
treatments, well not really treatments as it was made clear he would not go
into remission, but a brand-spankin’ new drug that had seen great success at
prolonging the inevitable.
Fall the ear infections
started for Lucky. She’d barely get over
one and another one would pop up.
Then mid-November Lucky
got sick. Not just a fever or ear
infection but a fever with projectile vomiting, sensitivity to light, swollen
glands in her neck, stiff neck. A trip
to her Pediatrician resulted in us being told to get Lucky to the ER as fast as
we could and to have someone to sit in back with her and watch her during that
5 minute drive. ER visit #2 ending in
numerous tests, including a spinal tap and an admission into the pediatric
unit of the hospital. She stayed there
for four days. Lots of possibilities thrown out but the Doctors ended on “just a
viral infection”. During this same time
Walleye and myself got pretty nasty colds.
December came and Duckie
was on this new super wonder drug. A
super wonder drug that wasn’t working. He needed to decide on a new course of
action – two options, he chose the one that could be done at his hometown
hospital. Lucky was still battling
fevers and ear infections. Walleye had to have surgery that kept him out of
work for a week. Three days after
Walleye’s surgery Duckie was to start a new chemo at his local hospital.
Complications arose and we got a call no one ever wants to get. The call was to get back home as quickly as
possible because the Doctors didn’t think he’d make it through the night. Well he did but it was clear there wasn’t
much time left. A week later he passed
away.
Christmas – Lucky’s first
but also our first without Duckie. The
service just 3 days before Christmas.
And of course another ear infection for Lucky. And then a ruptured ear drum.
2013 – a new year. It’s gotta be better than 2012 (with the
exception of Lucky’s birth – that was the bright spot of 2012). For 8 whole days (with the exception of Lucky
getting tubes in both ears) it appeared it might just be an easier year. Then my Great Aunt, my Dad’s Godmother and
last living older relative, passed away.
More fevers for Lucky and a trip to see a specialist at Children’s
Hospital in the cities. Tons of blood draws
and numerous tests later no answer except “an immature immune system” and that
she’d probably outgrow the fevers. BUT
she did not have a milk protein allergy but rather an egg allergy. And a very, very slight dog and cat…which I have had my two cats
for 10+ years.
OK maybe February will be
better…for a few weeks it appeared to be.
Whew. Oh wait – that sigh of
relief was too soon…my Mom ended up in the hospital, released only to be back
in the hospital a few days later.
Another phone call saying we needed to get home as soon as
possible. Things were bad, not quite as
bad as Duckie, but bad. There was talk of
nursing homes, of hospice, of the end being very near for my Mom.
Then a transfer to the
Mayo Clinic for a second opinion. Slowly
but surely she started to get better.
She was released to a nursing home to get stronger before reevaluating
whether or not she could go back home. 42 days later she did go home.
Of course
there were a few fevers in there for Lucky during this time. Plus trying to clean out my brother’s house
and get ready for his estate sale.
During all this we had to
find a new daycare and fight off Mother Nature’s relentless winter.
Mom made it home and Lucky
went over a month without a fever. We
thought for sure nothing more could or would happen. We thought if we could just make it through
the Estate Sale at the end of April things would get better. There wasn’t much left to happen that could
be worse.
We had finally found a
fantastic daycare. We were thrilled –
even though we knew she took the summers off and had to find a temporary
daycare. We felt it was work it because
she is that good. After a few weeks we
finally found a temporary one we felt comfortable with. Things were looking good – like it could be
an every summer and back up daycare for us.
The day before the Estate
Sale Walleye, Lucky and I were heading to my parents mid-afternoon. It was a beautiful, spring Friday
afternoon! Warm! Sunny!
Gorgeous! Helped make the
realization that we were having to let go of the last of my brother’s things
that weekend a little easier.
We were driving eastbound
on a highway, five minutes from my parents.
Traffic was moderately heavy but we were all going at a normal
pace. We approached an intersection that
is known for being somewhat hairy and Walleye let up on the gas as a car
started turning from the westbound lane right in front of us onto a
perpendicular road. For a split second a
huge sigh of relief because that could have been close. Until the car directly behind it decided to
turn as well. Right in front of us. This
time we weren’t as lucky. I don’t’
remember much between that first car turning in front of us and my not being
able to get my door open after the crash.
I remember the crash
happening very slowly. And like I was
watching it on the big screen of a movie theater. I remember the sickening crack as we t-boned
the other car’s passenger side. I
remember pushing the airbag away, trying to get my door open, screaming “I need
to get to my daughter” and after what felt like an eternity finally pushing my
door open just enough to get out. Then I
saw Walleye carrying the carseat over with a very mad, very frightened
Lucky. As I tried to call 911 Walleye pulled
Lucky out of the car seat. She seemed to
calm down. I finally got through to 911
– I don’t know what was all said except I was so very confused as to how the
operator knew where we were. I got off
the phone and grabbed Lucky.
We all seemed for the most
part to be OK, even the idiot driver who made a left hand turn into oncoming
traffic because we were in her “blindspot”.
(Which I think she was texting and saw the car in front of her go and
just went without looking but because no one saw her the cops can’t get a
search warrant to check. But at least
she got a ticket and it’s officially her fault and we aren’t responsible for
anything.) Cops arrived. They tried to cancel the ambulance but I
insisted. I wanted Lucky checked
out. She was only 13 months old and
can’t say if there is anything wrong.
And Walleye and I both had pain from the seat belts and airbags.
I know Duckie was working
OT in heaven as not 15 minutes before the crash I looked back at peacefully
sleeping Lucky (who was still in a rear facing infant seat) and she had somehow
managed to wiggle an arm out of the restraints.
She had never done that before.
Thankfully I was able to fix it before the crash – who knows how much
worse it would have been had I not noticed.
In the end thankfully no
one was seriously hurt. Lucky came out
of the whole ordeal the least affected – with the exception of nightmares that
started the night of the accident and happen ever so often ever since. For the past two and a half months Walleye
and I have been going to physical therapy and the chiropractor but all very
minor compared considering we had been in a head on, t-bone crash. We’ve been dealing with all the
inconveniences of finding a new car, dealing with insurance companies, time off
work for appointments, etc. But we will
gladly do those things knowing we were very fortunate.
The sale went OK. We’ve cleaned out the house – donated all unsold
items. The house has gone back to the
bank. So hard knowing that we can’t go
back to Duckie’s house. We can’t go play
a game of pool in his shed or drink a Schell’s beer with him.
In June, almost a year to
the date of Lucky’s first fever she got another one. This one turned out to be the start of
walking pneumonia – which as awful as this sounds – was “nice” to know why she
had a fever. That there was a cause this
time.
Then I got walking
pneumonia – but much worse than Lucky did thanks to an idiot, ego-centric PA
who didn’t listen to me when I told her about my symptoms and how they were so
identical to Lucky’s walking pneumonia ones and how I was sure that’s what I
had. Nope, the PA just thought it was
viral and told me to rest for a few days and to call back if things got
worse. When I did she reluctantly
prescribed me antibiotics and gave me a lecture that it was still almost
certainly just viral. I started feeling
better one and a half days after starting the antibiotics. Of course I happened
to get sick at an extremely busy time at work and had to develop presentations
for my Dean to take with on a trip to Europe with the University President and
the Governor of MN.
And of course being sick
and a huge work project wasn’t enough – we also had to deal with starting Lucky
at a new daycare only to find out when I picked her up on her first day that
they were being investigated for child abuse and neglect. Then the next day the provider’s license was
revoked. We had to find a new temporary
daycare and find one fast. And Lucky is in that age range that is hard to find
open spots right now.
A week or so after I got
sick we were all feeling good. Lucky
started her new temporary daycare and really seemed happy there. Things were, for the moment, relatively calm
at work. Maybe, just maybe, things would
finally be turning up.
We had plans to go to my
parents for what would have been Duckie’s 47th birthday. We were supposed to “spread his ashes” and
spend the weekend with my parents and sister but Lucky got sick. Again. This time with tonsillitis. Again, as much as I hate to see her sick it
was somewhat a relief to know “what” she had.
After a few days of rest and some meds she back to her normal, healthy,
happy self again.
And here we are almost 13
months after Lucky’s first fever…hoping and praying that things will get better
from here. I’m just not sure what else
could happen and how much more I can take…
Thursday, February 14, 2013
2.14.13
Happy Valentine's Day! Happy 11 month Birthday to Lucky!
Not-so-happy 2 months to the day since the last time I saw Duckie alive. I hate this. I hate living in the "2 months since...." or "last time..." or any of the numerous other anniversaries/reminders that Duckie is gone. Like I need a reminder - I never, ever forget.
Well that's not true. Sometimes, for just a moment, I do forget. Then just like that it all comes back and I feel like I have lost him all over again.
We didn't talk every day. We didn't see each other but once a month if we were lucky. We emailed a couple times a month. But I still miss him. I hate opening up an email with the intention of sending him a new picture of Lucky. I hate that I didn't get to send him the "Valentine Hug" from Lucky like I got to send to Walleye's brother and to my sister and to her Grandparents in their valentine cards. I am so sad that he is missing out on all these things. I know he really, honestly isn't missing anything because he is enjoying them right along with us just from a little bit farther away. It just sucks that we all aren't able to enjoy these things together.
This is not the direction I ever imagined my blog to go. I don't like that post after post is so sad and depressing. So, I will end this post with some fun things...
Our daycare lady had a baby so for the past two weeks we have had live-in nannies...my parents for a few days, then my sister and now my parents again. It's been awesome! And I am so thankful they are all getting to spend some much needed, quality time with each other.
My parents demanded Walleye and I go out for dinner tonight to celebrate Valentine's Day - free babysitter...heck yeah!
Lucky is fast becoming a toddler and no longer a baby. She crawls so fast and with such intensity. She loves finger foods. Is starting to use a sippy cup - well learning to use one at least.
She can do "so big" and give "high fives" and the other day she said "daddy" while pointing to a photo of Walleye on the wall. It's this embarrassingly huge, life size canvas from our photographer of one of our engagement photos. We want to take it down but the photographer is a friend of ours and we don't want to hurt his feelings and now that Lucky loves that photo we'll have to wait. My sister said she will stare and stare at it and if you ask her when Walleye and I are gone where we are she points to it.
Her hair in the past few days seems to be growing by the minute -longer, thicker and coarser.
We were able to celebrate my Grandma's 90th birthday last weekend. It was so fun to see her with Grandma! So nice to see so many loved ones. Even Grandma's identical twin sister was able to come!
We are getting a nice sized tax refund back so are buying a big, comfy, ridiculously expensive king-sized bed! Oh I cannot wait!!!
Not-so-happy 2 months to the day since the last time I saw Duckie alive. I hate this. I hate living in the "2 months since...." or "last time..." or any of the numerous other anniversaries/reminders that Duckie is gone. Like I need a reminder - I never, ever forget.
Well that's not true. Sometimes, for just a moment, I do forget. Then just like that it all comes back and I feel like I have lost him all over again.
We didn't talk every day. We didn't see each other but once a month if we were lucky. We emailed a couple times a month. But I still miss him. I hate opening up an email with the intention of sending him a new picture of Lucky. I hate that I didn't get to send him the "Valentine Hug" from Lucky like I got to send to Walleye's brother and to my sister and to her Grandparents in their valentine cards. I am so sad that he is missing out on all these things. I know he really, honestly isn't missing anything because he is enjoying them right along with us just from a little bit farther away. It just sucks that we all aren't able to enjoy these things together.
This is not the direction I ever imagined my blog to go. I don't like that post after post is so sad and depressing. So, I will end this post with some fun things...
Our daycare lady had a baby so for the past two weeks we have had live-in nannies...my parents for a few days, then my sister and now my parents again. It's been awesome! And I am so thankful they are all getting to spend some much needed, quality time with each other.
My parents demanded Walleye and I go out for dinner tonight to celebrate Valentine's Day - free babysitter...heck yeah!
Lucky is fast becoming a toddler and no longer a baby. She crawls so fast and with such intensity. She loves finger foods. Is starting to use a sippy cup - well learning to use one at least.
She can do "so big" and give "high fives" and the other day she said "daddy" while pointing to a photo of Walleye on the wall. It's this embarrassingly huge, life size canvas from our photographer of one of our engagement photos. We want to take it down but the photographer is a friend of ours and we don't want to hurt his feelings and now that Lucky loves that photo we'll have to wait. My sister said she will stare and stare at it and if you ask her when Walleye and I are gone where we are she points to it.
Her hair in the past few days seems to be growing by the minute -longer, thicker and coarser.
We were able to celebrate my Grandma's 90th birthday last weekend. It was so fun to see her with Grandma! So nice to see so many loved ones. Even Grandma's identical twin sister was able to come!
We are getting a nice sized tax refund back so are buying a big, comfy, ridiculously expensive king-sized bed! Oh I cannot wait!!!
Thursday, January 17, 2013
His voice...
tonight will be one month since the last time I heard Duckie's voice. One whole month. How can that be? He was interviewed on the local news a few years back about his job - it's on my DVR. Locked, so it can't be deleted. I have a voicemail from him on my cell phone from this fall. I hit save every time I get the noticed it's about to expire. I haven't watched or listened to either yet, I am not sure I can but I am keeping them so I never forget his voice. Thankfully I can still hear when I remember him. But it's only been a month...already been a month.
Saturday will be one month since he passed away and the last time I ever saw his earthly body.
This past month has been a blur. The first few weeks after he passed away I don't remember much and what I do remember I can't tell you what happened when - days seem to have melded together into one long, exhausting, nightmarish day.
What I do remember is the outpouring of love, support and prayers myself and my family have received.
I never before in my life have felt the prayers of loved ones, friends, family and even perfect strangers as strong as I have this past month.
And for that I am grateful.
As much as Lucky has helped me get through this, the love, prayers and support of others have as well.
There have been so many nice gestures - food being given to us, flowers/plants, memorial donations, a gift card to a local nursery, trinkets, phone calls, emails, texts, hugs and prayers.
I got an out-of the-blue call from a friend whom I hadn't seen in months, the other day. She wanted to get together and have drinks or dinner. I know she's busy and lives almost an hour from me.
The flowers Walleye brought me the other day because I was having a sad day. Purple and pink daisies.
The "Beloved Brother" stone my dear friend gave me this week. The day after I got a gift card to the local nursery where we plan on buying some bushes or a tree in honor of Duckie. And now that stone can go by whatever we purchase.
The random "thinking of you today" or "how are you doing" texts and emails I get from various people any given day.
The list could go on and on. It helps, it may hurt or bring me to tears at the time but it helps. And I am truly grateful.
But dang it I still miss him. And it still hurts so much. Please tell me it gets easier?
Saturday will be one month since he passed away and the last time I ever saw his earthly body.
This past month has been a blur. The first few weeks after he passed away I don't remember much and what I do remember I can't tell you what happened when - days seem to have melded together into one long, exhausting, nightmarish day.
What I do remember is the outpouring of love, support and prayers myself and my family have received.
I never before in my life have felt the prayers of loved ones, friends, family and even perfect strangers as strong as I have this past month.
And for that I am grateful.
As much as Lucky has helped me get through this, the love, prayers and support of others have as well.
There have been so many nice gestures - food being given to us, flowers/plants, memorial donations, a gift card to a local nursery, trinkets, phone calls, emails, texts, hugs and prayers.
I got an out-of the-blue call from a friend whom I hadn't seen in months, the other day. She wanted to get together and have drinks or dinner. I know she's busy and lives almost an hour from me.
The flowers Walleye brought me the other day because I was having a sad day. Purple and pink daisies.
The "Beloved Brother" stone my dear friend gave me this week. The day after I got a gift card to the local nursery where we plan on buying some bushes or a tree in honor of Duckie. And now that stone can go by whatever we purchase.
The random "thinking of you today" or "how are you doing" texts and emails I get from various people any given day.
The list could go on and on. It helps, it may hurt or bring me to tears at the time but it helps. And I am truly grateful.
But dang it I still miss him. And it still hurts so much. Please tell me it gets easier?
Tuesday, January 15, 2013
God's plan and ever perfect timing
During our IF struggles I clung to what so many others were telling me – that God has a plan and if his plan includes a baby for Walleye and I it would be in his time and that timing would be perfect. I tried so hard to hold onto, to believe it and to be comforted by it.
To be honest once we got pregnant I didn’t really think much more about it. I was grateful for Lucky and realized that we were pretty “lucky” in that we only had to wait not quite a year and a half when others have had to wait so much longer.
I enjoyed every minute of my pregnancy and have enjoyed every day of the last 10 months since Lucky was born. Not really ever thinking about the timing but always being thankful He answered our prayers and made us parents.
We got pregnant a few months after Duckie found out about the cancer. My sister and I talked a few times about how thankful we were to have my pregnancy to help bring joy and excitement for our family when talking about the future. We both felt it was just what our family needed during such a sad time. It was a glimmer of hope and joy for the future.
Once Lucky was born I didn’t really give it much more thought. Even when we got bad news that his year of three times a week shots didn’t work, and each time we heard the cancer had spread again. Each time a treatment failed. Lucky was always there and was always a bright spot in my day but I didn’t really think about the timing of everything.
Even the blur of the first few days and weeks after Duckie passed away we all said we were thankful for the distraction Lucky brought but it really didn’t dawn on me until yesterday. I don’t know why yesterday, not quite a month to the date of Duckie’s passing, but yesterday it really hit me how perfect God’s plan is.
I honestly don’t know what my family and I would have done this Christmas without her. I just can’t help but truly believe that all along God knew that we needed her, at the age she is now, to get us through Christmas – and quite honestly Duckie’s courageous battle with and eventual death from cancer.
She is at such a fun age right now. Her smile can melt even the coldest of hearts. She’s showing her personality more and more each day. She didn’t quite “get” Christmas this year but she was a lot more fun than, say a 2 month old would have been. (Nothing against 2 month olds!) She’s hitting new milestones – more teeth, crawling, self-feeding bits and pieces, etc – and they are fun (well ok maybe not the teething!) and exciting and for just a minute they help me forget the huge hole in my heart.
Tuesday, January 8, 2013
This is a long one...
So much has happened in the two months and two days since I posted last. It’s really hard to believe that it has only been two months. It feels like a lifetime.
I wish I could say those two months were filled with many happy times and that I wasn’t writing this with a completely broken and shattered heart and spirit.
The second week of November Lucky got sick. At the same time Walleye and I were sick. We thought it was just another ear infection but when she started having diarrhea and projectile vomiting. Add in that noises, not necessarily loud noises, startled her and she seemed to have a stiff neck. We took her to her pediatrician who right away could tell she was very sick and within 15 minutes had us on our way to the ER to be tested for meningitis. It was so severe the Pediatrician asked if we wanted an ambulance but we figured it would be quicker if we took her ourselves right then and the pediatrician made sure one of us sat in the back with her to watch her. It was so scary.
So after an agonizing drive across town we go to the ER and was rushed in and they started tests on her. Including the spinal tap. It was horrific. The test came back at a 7 and anything over a 5 they have to culture and watch for a few days. They said it could have been partially treated meningitis but that they weren’t sure – Lucky had been on and off antibiotics for a couple weeks prior and had just started a new antibiotic for the ear infection two days prior. So they admitted her to the hospital while they waited for the culture results.
Over the next few days her fever rose and fell numerous times, she had an IV with fluids and antibiotics and stayed in the hospital – where we never left her side. After 72 hours of nothing growing in the cultures the Dr. said if she started eating better they’d let her go and were just chalking it up to a bad viral infection. I don’t know if she understood the Dr. or what but that very next meal she ate like a rock star and we were out of the hospital 18 hours later!
Thankfully Lucky recovered and recovered quite quickly but she is not at all fond of people in blue scrubs or white lab coats. I would not be either after all the poking and prodding she had to go through at such a young age. We are so grateful she made a full recovery.
During that time Walleye had to have an abscess drained and all the “fun” that goes along with that. And I battled a pretty nasty cold.
The Tuesday before Thanksgiving Duckie had some tests done and we found out the cancer had spread again (brain, bone, and liver) and that they were going to up his pills again. They suggested he go to the Mayo or U of M to discuss other treatments. He chose the U and had an appointment the end of November.
We were able to have a nice Thanksgiving dinner with my parents, sister and brother and then Thanksgiving supper with Walleye’s parents, brother and aunt. Black Friday my sister and sister/cousin/best friend and I were able to do our annual Black Friday shopping.
After Thanksgiving, Duckie went to his appointment at the U and they gave him a couple options. He chose the one that would allow him to not have a hospital stay and to be able to get the treatment in our home town. He did not want to have to continue to go to the cities, a two hour one way drive, for treatment. He felt strongly that he should get treatment in our hometown hospital at their cancer center. I can’t blame him one bit.
So insurance, the U and our hometown hospital got to work getting things set up for treatment. It would be a couple weeks.
In the meantime Walleye ended up having to have surgery on the abscess as it didn’t heal. He needed to be off work for at least a week and change and pack the dressing numerous times a day. He needed to take a shower and sitz bath after every bowel movement and was in quite a bit of pain.
Two days later Duckie was scheduled to start his first treatment of this brand new chemo.
They tried to get the chemo in his arm but had a hard time getting the IV in and once they finally did when they flushed it his arm swelled up. Then they decided to try the foot. They were able to get the IV in the foot quickly and easily but right before they were to administer the chemo they were told it was not allowed to be administered into the foot. We haven’t heard why. So they decided to put a port in.
By that point Duckie had had enough and said he wanted to just come back the next day but apparently the chemo was good only for that day and they nurses kept telling him it was so expensive that they really should do it that day. He finally agreed. Then it was a matter of finding a Dr. that could put one in that day yet. Finally mid-afternoon a Dr. agreed to rework his schedule and fit it in. So Duckie went to surgery.
During surgery he aspirated. All he had eaten or drank all day was a half a can of diet root beer at 9:30 am but still he vomited during surgery and aspirated, getting stomach fluid into his lungs.
Then things started going downhill. Our local hospital didn’t feel they were capable to treat Duckie and they moved him to a larger hospital 45 minutes away. At about 7 pm that night the Dr. told my parents to call Duckie’s siblings as they weren’t sure he’d make it through the night.
So I threw a few clothes in a bag, kissed Walleye good bye and headed to visit Duckie. When I got there he was on a ventilator and had all sorts of tubes and wires everywhere and was unconscious. They had him in the ICU, sedated and paralyzed so if he did wake up he wouldn’t try to pull any of the tubes and wires out.
About 2 am the nurses kicked us out and said that we should go home, get some rest and come back in the morning around 9 when they did rounds. We were back by 8 am and Duckie was starting to come to. He was responding to our voices and as the day progressed he seemed to be getting better.
We had an onslaught of family stop by throughout the day. Most of my aunts and uncles. Some of our closer cousins. At one point they almost kicked us out of the ICU for having too many visitors and being too loud. It sure helped though. Maybe not Duckie but it helped us to have family around.
Finally around 6 that night they pulled the tubes and he was able to breathe on his own. He was really weak and they asked that we leave so he could rest. It was such a relief to see him without all those tubes and wires.
I was back by 7 am the next morning and he was sitting up in a chair, drinking coffee. I walked in and said “Good Morning Dorkbutt” – which is what I’ve always called him. His response was to flip me the bird – a true Duckie response! Never before in my life has being flipped off made me happier! I didn’t stay too long as he was pretty weak and tired and was going to get back into bed.
That was on a Friday. December 14th. Lucky’s 9 month birthday. I went home and Walleye, Lucky and I were going to go back down that Saturday to visit but the weather didn’t cooperate and we had a family meal with Walleye’s parents and great aunt and uncle that next day. But I called Duckie on Saturday but had woken him up so didn’t talk long. Sunday he wasn’t taking visitors or phone calls as he wanted to rest.
Monday night, December 17th, I chatted with Duckie for a bit. Told him about Lucky’s latest developments and said I would call again soon and that I loved him. He said I love you back – which is huge because he’s not really an express how he feels kind of guy. That day was the 19th anniversary of my Grandpa’s death.
There was talk on Monday and Tuesday that Duckie may be able to get out of the hospital and go to a nursing home for rehab and then to my parents until he regained his strength. We were all thinking and hoping before Christmas this would happen.
Tuesday, December 18th Lucky had an ENT appointment and all looked clear. By 6 pm she had a fever of about 100. It was gone by the next morning so we thought maybe it was teething. Took her daycare. She was acting fine and not sick. So we weren’t too worried.
Wednesday, December 19th on my way to work one of my dear friends called to see how Duckie was and how we were all holding up. I told her I just had this feeling that Duckie was never going to leave the hospital. I hoped it didn’t come true and that I was just being over dramatic.
A few hours later I got a call from my Dad telling me to come home and that Duckie was asking for my sister and I. They didn’t think he’d make it through the day. I called Walleye sobbing so hard I couldn’t even talk for the first minute or so. We made arrangements for Lucky to stay longer at daycare – figuring Walleye could drive me down, say goodbye to Duckie and head back to pick up Lucky that evening. Walleye picked me up and we weren’t 15 minutes down the road and he noticed he had a voicemail. I knew before he even listened. Duckie had passed away.
My Dad had tried calling me but for some reason I didn’t hear the phone. So he left me a voicemail asking me to call him back. Then he tried Walleye and left him a message that Duckie had passed.
I have never in my life felt a pain in my heart like that. I screamed “no, no, no” over and over again. Tears streaming down my face. And then I couldn’t breathe. I just couldn’t believe it was true. I finally composed myself long enough to call my Dad back to hear it from him.
My Mom was with him when he passed. My Dad was just outside trying to find my sister’s new work number. They are pretty sure he waited until they got there. Mom said it was very peaceful. She was rummaging in her purse for something and it got very quiet and still in the room and she said she knew before even looking up.
My big brother. Captain Cool. Dorkbutt. Is gone.
This is so hard. Some days it doesn’t even seem real. And other days it hits me like a ton of bricks. The strangest things can upset me – seeing a video of someone dancing to “The Twist” at a wedding, you see, that was what Duckie and I did at every wedding. See who could twist the lowest to that song. The simplest things can calm me. Driving to my parents last weekend and the beautiful, sparkling snow brought Duckie to mind and very calm, peaceful feeling. Knowing that’s he’s ok now. He’s with our loved ones and he’s waiting for us in heaven.
Unfortunately that’s not where the stress and sadness ends. During the few days after his passing Lucky got even more sick, turns out she had an ear infection and the a perforated ear drum. An urgent care visit, a pediatrician visit and a visit with the ENT and a few days later she had tubes put in.
A friend of Walleye’s was killed in a snowmobiling accident. He wasn’t good friends with him and it had been a few years since he had seen him last. He left behind a new wife and many other loved ones.
And now, two days ago, my Dad’s Aunt/Godmother passed away.
Tuesday, November 6, 2012
Still Here!
Has it really been over two months since my last post? Things have been beyond crazy busy around here.
Duckie is holding his own. He's been on the uber expensive brand spankin' new drug since the beginning of September and originally was on 4 pills twice a day but after a month or so they moved him down to three pills twice a day!
His friends (and my sister and I helped as much as they would let us) put on an amazing fundraiser for him. Friends, relatives, community members and complete strangers came out in droves and donated thousands of dollars for him. I am completely speechless by the outpouring of love and support he has received. He is back working - his job has been wonderful - they said as soon as the Dr cleared him to work they would find a job for him to do since he couldn't do his current job. They, his employers, were also a major force in the fundraiser as well!
He goes back in about a month for more pictures so we will know more how things really are but for now he's living every day to the fullest and enjoying the fact that he feels good except for some tiredness and nausea.
Work has been beyond crazy. I am basically doing three full time jobs all by myself. I am all for job security but this borders on absurd. I do what I can and try very hard to not bring home the stress of it all. I refuse, absolutely refuse, to put in more than my 40 hours. I hate being away from Lucky for those 40 hours the way it is. And quite honestly I don't get paid near what I should for the work they expect from me.
G is doing well. I can't believe she will be 8 months soon. She grew out of the colic stage - not sure exactly when but it's so nice that she's a happy baby now! As horrible as the colic was I sometimes forget just how bad it was. I know it was bad but its so easy to forget when you look at her adorable smiling face.
She has been battling ear infections for the past month and had roseola in the middle of it all. She has some crazy mad wax build up and super small ear canals so her Pediatrician is recommending we take her to an ENT. I am all for it.
Walleye and I managed to get up north for our annual anniversary trip at the beginning of October. Instead of staying at our usual cabin we changed locations and went four wheeling instead. My parents and sister came to watch Lucky - they were in heaven! I don't know who enjoyed it more...them or Lucky!
My Mom and Walleye's Mom are doing well considering all their health problems. I am so thankful for that!
Oh and the best news...Free Loader is GONE! They broke up a month or so ago! Can you hear the heels of my shoes clicking as I do a happy dance? Unfortunately it happened without my BIL getting hurt - basically for the last 1.5 years she has been cheating on him (they weren't even together for 2 years!) and when he brought it up they fought and she got physical with him and ended up in jail. We are all very relieved and thankful that relationship is over. I hope the kids came out of it OK though.
Happy Election Day!
Duckie is holding his own. He's been on the uber expensive brand spankin' new drug since the beginning of September and originally was on 4 pills twice a day but after a month or so they moved him down to three pills twice a day!
His friends (and my sister and I helped as much as they would let us) put on an amazing fundraiser for him. Friends, relatives, community members and complete strangers came out in droves and donated thousands of dollars for him. I am completely speechless by the outpouring of love and support he has received. He is back working - his job has been wonderful - they said as soon as the Dr cleared him to work they would find a job for him to do since he couldn't do his current job. They, his employers, were also a major force in the fundraiser as well!
He goes back in about a month for more pictures so we will know more how things really are but for now he's living every day to the fullest and enjoying the fact that he feels good except for some tiredness and nausea.
Work has been beyond crazy. I am basically doing three full time jobs all by myself. I am all for job security but this borders on absurd. I do what I can and try very hard to not bring home the stress of it all. I refuse, absolutely refuse, to put in more than my 40 hours. I hate being away from Lucky for those 40 hours the way it is. And quite honestly I don't get paid near what I should for the work they expect from me.
G is doing well. I can't believe she will be 8 months soon. She grew out of the colic stage - not sure exactly when but it's so nice that she's a happy baby now! As horrible as the colic was I sometimes forget just how bad it was. I know it was bad but its so easy to forget when you look at her adorable smiling face.
She has been battling ear infections for the past month and had roseola in the middle of it all. She has some crazy mad wax build up and super small ear canals so her Pediatrician is recommending we take her to an ENT. I am all for it.
Walleye and I managed to get up north for our annual anniversary trip at the beginning of October. Instead of staying at our usual cabin we changed locations and went four wheeling instead. My parents and sister came to watch Lucky - they were in heaven! I don't know who enjoyed it more...them or Lucky!
My Mom and Walleye's Mom are doing well considering all their health problems. I am so thankful for that!
Oh and the best news...Free Loader is GONE! They broke up a month or so ago! Can you hear the heels of my shoes clicking as I do a happy dance? Unfortunately it happened without my BIL getting hurt - basically for the last 1.5 years she has been cheating on him (they weren't even together for 2 years!) and when he brought it up they fought and she got physical with him and ended up in jail. We are all very relieved and thankful that relationship is over. I hope the kids came out of it OK though.
Happy Election Day!
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